%0 Conference Proceedings
%T Advanced Kidney Disease Patient Portal: Implementation and Evaluation with Haemodialysis Patients
%+ University of Strathclyde [Glasgow]
%+ Queen Elizabeth University Hospital (Glasgow)
%+ University of Edinburgh (Edin.)
%A Meiklem, Ramsay
%A Stevenson, Karen
%A Richarz, Sabine
%A Kingsmore, David, B.
%A Bouamrane, Matt-Mouley
%A Dunlop, Mark
%A Thomson, Peter
%Z Part 4: Design Methods
%< avec comité de lecture
%@ 978-3-030-85615-1
%( Lecture Notes in Computer Science
%B 18th IFIP Conference on Human-Computer Interaction (INTERACT)
%C Bari, Italy
%Y Carmelo Ardito
%Y Rosa Lanzilotti
%Y Alessio Malizia
%Y Helen Petrie
%Y Antonio Piccinno
%Y Giuseppe Desolda
%Y Kori Inkpen
%I Springer International Publishing
%3 Human-Computer Interaction – INTERACT 2021
%V LNCS-12933
%N Part II
%P 175-196
%8 2021-08-30
%D 2021
%R 10.1007/978-3-030-85616-8_12
%K Chronic diseases
%K Patient portal
%K Co-design of digital health
%Z Computer Science [cs]Conference papers
%X Patients on haemodialysis face complex care pathways, a high treatment burden and lower quality-of-life. Working with multidisciplinary domain experts, we have conducted several iterative development cycles to design, develop and evaluate a portal for patients on haemodialysis that can help them better understand and navigate their care pathways. A key functionality of the portal is to improve data and information sharing with clinicians, including on key aspects of quality-of-life through Patients Reported Outcome Measures. A case study was conducted with multidisciplinary experts and patients in the NHS Greater Glasgow and Clyde health board (Scotland), using interviews combined with the System Usability Scale (n = 26). Patients’ feedback and system use observations were used to further refine the system design requirements and functionalities. Key lessons include: a wide preference for tablet-based input vs paper, identification of case-specific accessibility issues and situational impairment, benefits of self-completed digital data collection in overcoming such issues and promoting patient independence and privacy, with considerations for maintaining perceived value and engagement with such systems and when to offer alternatives.
%G English
%Z TC 13
%2 https://inria.hal.science/hal-04196839/document
%2 https://inria.hal.science/hal-04196839/file/520516_1_En_12_Chapter.pdf
%L hal-04196839
%U https://inria.hal.science/hal-04196839
%~ IFIP-LNCS
%~ IFIP
%~ IFIP-TC13
%~ IFIP-INTERACT
%~ IFIP-LNCS-12933